This Monday (October 1) Pannal golf club will again be playing host to the second annual charity golf day organised by the Harrogate-based Melorheostosis Association UK – and fund-raisers are determined to beat last year’s total of £10,000.
 
Melorheostosis (Melo) is a rare and crippling bone disorder. It is characterised by surplus, abnormal bone formation, which, on x-ray, makes bones look as though they are coated with melted candle wax or dripping honey.

Although Melo has been diagnosed in only about 120 cases worldwide, it is estimated that as many as a million people may have the disease. With so few case studies to work with, scientists and doctors are struggling to establish patterns in order to find the cause, optimum treatment and ultimately a cure.
Harrogate property developer Andrew Carnell is one of fewer than 20 known cases of Melo in the UK and launched the charity to raise £500,000 to equip scientists and doctors with the resources to find out more about the disease.

He said: “Every penny raised at the golf day will be channelled into this ground-breaking research work.
“We have been fortunate to secure a great course to host the event and we hope that the Yorkshire business community will support us by putting up teams. Every team that enters makes a direct contribution to unlocking the mysteries of Melo.